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Laura8888's avatar

Anyone have hyperthyroidism?

Asked by Laura8888 (264points) September 1st, 2020
8 responses
“Great Question” (3points)

For 20 years I’ve had the opposite—HYPOTHYROIDISM and now suddenly I’m told I have Hyperthyroidism. I really believe it’s because my doctor gave me 100 mg of levothyroxine and that it worked “too well”. I think it’s medically induced and always thought giving me 100 was too high. Now he wants me to see an Endocrinologist and said my number for my thyroid is too high—29.1. Anyone on here have this problem? He made it sound like I should get to the doctor asap but I feel fine. I called and they are all booked through December so I need to have my primary call there to get me in sooner. Is this a big emergency? I never liked taking levothyroxine and I swear this “hyperthyroidism” that I’m having for the very first time is medically induced. Thanks for advice.

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Answers

gondwanalon's avatar

I’m not a doctor.
Looks like you are taking too much levothyroxine. The the problem with that is that over time it may shut down your thyroid gland. I’m thinking that the levothyroxine replace the thyroid hormone and in doing the thyroid doesn’t need to generate hormones. I suspect that your TSH is very low or zero. That might over time negatively effect your posterior pituitary gland.

All drugs are a double edged sward. What is strong enough to help is strong enough to hurt. You have to decide if the drug is helping more than hurting.

I’ve taken very strong heart drugs that about fried my thyroid gland, liver and lungs. It all depends on how much collateral damage you are willing to accept.

Good health!

Hawaii_Jake's avatar

I live with hypothyroidism. I take 100 MCG of Levothyroxin. That’s micrograms. I suggest you check the dosage you’ve been taking. I don’t think the medicine comes in a dosage that high.

JLeslie's avatar

I’m not a doctor.

I think you were the jelly who I suggested you might be overmedicated and it is causing your heart to race, is that right?

What is 29.1? That does not sound like hyperthyroid number.

Of course, it is very likely medically induced. It doesn’t sound like a big emergency, but I would say you need to cut your dose now, what did he suggest? Have you been taking the same 100 mcg for years and suddenly it is too much? Don’t start thinking now you have “hyperthyroidism” as some sort of permanent state, you are likely just overmedicated and still really are a hypothyroidism patient.

What is your TSH? If it is less than 1 (which it must be if your doctor said you are hyperthyroid, but you must check your lab work, do NOT only rely on your doctor to look at your numbers) then if it were me I would skip ONE day of meds, and then go to taking the lower dose you were prescribed, and I would want to get tested again in 3 weeks to see how the needle was moving on my TSH. I made a lot of assumptions there.

You should see an endocrinologist because too often GP’s aren’t good at dealing with hard to regulate thyroids, but you can wind up with a bad endocrinologist too. You might be easy to regulate, just currently on the wrong does.

Also, you have to stick with the same manufacturer on your drugs. If you use a generic, which is fine, then if they change the manufacturer it is likely your medication will contain a different dose of hormone in the medication, I can explain that more if you do take a generic. The generic would still be called the same thing, just different manufacturer.

I have to take four 88mcg and three 100 mcg per week to stay close to regulated, and on that does I get overmedicated after 4–5 months, but on five 88 mcg and two 100 mcg a week after a few months I will be way undermedicated, and have never been able to develop a perfect pattern to regulate it so I take the three 100’s pattern for a few weeks, and then the 2 100’s pattern a couple of weeks and then I stay pretty good. It took a few months to figure this out, because it is not a new dose every day, but literally just ONE PILL a week slightly higher or slightly lower dose, and no GP ever recommended anything close to that to figure out what the help was going on with stabilizing my thyroid. Your situation could be different than mine of course, but a lot of people are like me.

This could be good news, your heart might correct once you correct your thyroid.

@Hawaii_Jake It comes in higher doses than that. The OP said she takes 100 mcg.

Hawaii_Jake's avatar

@JLeslie You have misread the OP. She states she’s taking 100MG.

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JLeslie's avatar

You might want to ask your pharmacist if they recently changed manufacturers for your thyroid meds if you’re curious. Remember I will get over medicated from just 12mcg too much a week. So just a minor fluctuation of hormone in the manufacturing process and I’ll eventually have my thyroid levels off the charts, but way before they are at that extreme I have my hair falling out, heart racing, eyes so dry I can barely open them, itchy skin, hungry all the time, and not sleeping well.

Maybe switch to brand if you find that you are very sensitive to minor dose changes. You’ll figure it out over the next few months. I take Unithroid, I happen to be allergic to Synthroid, which is very rare.

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