Most recent update: “started chemo today. I’m miserable at this moment, so I thought I’d try to do things to occupy my mind. Tried knitting, I knitted a knot. Tried painting, that was just bad. I even tried welding…well, there’s some kind of metal sculpture going on….looks like the finger to me”
Oh, you know it’s bad when homemade soup won’t make you feel better. Shouldn’t there be some kind of cosmic law…if you are going through treatments for something big, one should not have to deal with a cold or the flu? Ick.
I had to figure out where to post! I’m heading to bed. It’s been a rough few days, between chemo and my daughter finally reaching her limits in dealing with this and the fact that my son shared his cold/bug/germs…whatever, with me…well, it’s just been tiring.
I appreciate all the thoughts and hope to be on here soon. This chemo is kicking my butt faster than it did before, so I’m just riding the waves right now.
Save a cookie for me when I can finally stomach some food!
Her latest facebook update: When you send your 1st grader to school saying, “No, today is not the day they make me into a toxic wast dump, one should really think about what they are saying. According to my son’s 1st grade class, I am a toxic waste dump and should really go green. I love 6yr old children!
Worn out. Tired. Fatigued. Annoyed. Yeah…all of those. I’m still smiling and joking, though. No reason not to joke or laugh. It’s not like I’m dying (I refused to do that yet) and if I was, I’d still laugh.
I’m waiting for my hair to fall out. We need hair, it really does keep you warm! Why, oh why, do I only go through chemo in the cooler months?
My mother used a weird combo that kept most of it intact (mind you, she had plenty of it and very thick too, so maybe that’s why). She still wore a wig for a while though. I think it might make you feel better if you just shave it all off yourself and wear a wig (or beret or something) rather than watch it fall.
In any case, hope you’re feeling better by the day. Glad you’re back :)
Cak: Black velvet beret, red satin rose pinned on rakishly and big earrings. I agree with shaving it all. Sorry that everything is so nasty…temporarily, I am sure.
Or for a different take, mcbealer’s gnome hat, a Groucho mustache and a red clown nose.
Glad to see you on here!
Although I don’t know you personally, I can tell you are loved and admired by many. Know that there is plenty of love and positive energy and thoughts for you on here.
I have just lost my cousin to a brain tumour and at his memorial service we all talked about his unending positive thinking and how we really all truly felt we should take his example of living what life any of us have to the fullest.
I know all will be well for you and it is great to hear you being positive and refusing to give up. You are an insipration xx love to you and your family xx
@Buttonstc It is National Pirate Day in the island town of Szungumbiru, SE of Madagascar. And as a tradition, everybody who is either a pirate, or decendant of an exiled convict, or a dog (and I think rooey here is all 3) has to be dressed up. I thought everybody knew that! Well, pirates do, anyway :P
@All; Should we talk about pirates elsewhere?This thread is about Cak. No news is bad news, to me. I have a close family member with the same blood cancer. His newest hope is a kitten named Nutmeg who just arrived.
[Mod Says] International Talk Like a Pirate Day is a different topic. One which I enjoy myself, but this thread is about @cak‘s recovery and we should keep it directed to wishing her well.
(not Chris – her husband) Chris has taken some time off due to a serious car accident her sister was involved in last week. She remains in ICU and is not out of the woods. Chris is also fighting chemo and it’s hitting her very hard. She’s… resting alot, which is what she needs to be doing. Thank you all.
Life sometimes throws curve balls and it takes a lot to cope, I am sure that I am not alone when I say that love and positive thoughts are still with @cak andeven more so now this terrible accident has happened xx
Ah ok, thanks for the info. Because I remember her talking about the mastectomy, didn’t know about the previous problems. This is probably why it went so bad. Mastectomy is a relatively simple operation nowadays, and I was surprised to find out how much trouble cak had been having with it, when my own mother (20 years ago and with the research still infantile) went back to work a couple of weeks after the operation. So things are actually tougher than what I had originally expected. Hang in there, cak! :)
Hi everyone. While I’m still awake, I thought I’d drop in. I’ve just started to feel better after a massive infection – what used to be the left one wasn’t happy about leaving, I guess.
My sister has improved and continues to improve. She will be in physical therapy for quite some time, but it’s better than other outcomes. She’s a fighter, my entire family is.
Thank you for the continued supports, laughs, and thoughtful words. They mean a lot.
Chris Anne wrote: I need to gain weight. Funny, that is what the doctor is telling me. I have my head in the toilet half the freakin’ day. Gain weight…my not so big butt!
And this last night:
Chris Anne: I’ve decided I don’t have cancer. I have the Pain in the A$$ syndrome. It is a royal PITA!
@whatthefluther: Granted that @Cak is remarkable, but she is not the only one. You are both tied for Gold Medals (or a stuffed mouse, if you like. The taxidermist has been busy here.)
Can somebody please tell me what this means? In that quip, she said that “If I listen this time, I won’t make it till Christmas”. I sent her a PM about it, but she hasn’t replied me yet. I’m really worried…
@Saturated_Brain – Several times in her earlier fights against cancer, cak was told in no uncertain terms to get her affairs in order. At one point her doctors gave up on her so she switched doctors and hospitals. I suspect she is referring to that and has been given yet another deadline, one that she is determined to beat.
Whether she will prove the doctors wrong yet again I do not know, but if anyone can it will be cak. She is certainly in the hearts and prayers of many people.
Having been partway there, my strong sense is that to introduce two strangers in real medical crisis to each other makes no sense at all. It is an unnecessary and energy-consuming distraction.
@gailcalled – Possibly, but @cak has been very supportive to others who had been in the midst of difficulties, and I know that she has also asked for and gotten advice from people who have also been in crisis. Note: I first met cak on Askville and have both gotten and given support. She may have some words of wisdom for @majorrich that will help him get through the process. At the very least she can share how she manages to remain sane when in the hospital for long periods.
I’m working on finding a doctor to take my case on. I’m kind of in limbo. I still have an active oncology team, but they pretty much have resigned to the, “there’s not a whole lot left to do” theory.
I’m still kicking, just had a rough stay in the hospital. An extended one, at that. Blah!
@Judi – that is one of the places we are looking at right now. We’re also looking overseas. It’s a process and we have good people helping us out. Lots of calls, lots of pleading and every now and then, we here “yes.”
It took me forever to find this, and I’m not even sure if it’s the most “up to date” Cak thread.
Cak’s Facebook status today included this update: “I’m completely in remission; however, had a ruptured cerebral aneurysm in the summer. Clipping surgery has been a slow recovery, but I’m ok.”