I have a few Marfan's Syndrome symptoms, Can i really have it even if not classic?
Hi. I’m early 30’s but from pictures from childhood etc I’m the one that stands out the most. Me and my younger sister. I have super skinny and long limbs.
I also have scoliosis, i went to the doctor too and he noticed i have some eye cross in one of the eyes. And i’ve been having serious chest pains since i was 13 years old.
No i don’t have double jointed fingers. in fact my fingers are worse than normal. Like i can’t bend my big toes at all. They dont bend. Usually some marfan people have super flexible fingers, but not me.
But i seem to also get damage easily. LIke now, a few weeks ago my ankle started to come out of place when i walk or use my ankle It hurts really bad. where did that come from ? i didn’t even get injured.
ANd my ribs keep hurting me realy bad.
I dont have insurace so I can’t get checked.
My Family doctor does think i may have marfans. And my orthopedic also thought that, and some other orthopedic also, just by seeing me suspects i have it. Then another orthopedic doc i saw some years ago, also saw me and suspected it.
Again, i dont have all the classic symptoms, but i do have some.
So, what to do? Since some years ago i also noticed that when i do hard exercise( light running)..like running without stopping for a while. my chest starts to hurt alot. so i have to stop.
I can’t do much running nowadays because i have knee injuries and so i can only do it sometimes but I heard if you have marfan’s it’s dangerous to do strenous exercise.
any advice?
Composing members: 0