One of my sisters was plagued with many difficulties from birth, which continue to this day. She is an incredible human being, and I would not give up one minute of her life for a more “normal” childhood. I love her with all my heart!
What is so heartbreaking, is that she carries a profound burden of guilt for her existence, and the impact her medical issues have had upon the others of our family. She is suffering, due to this burden she has assumed, emotionally and physically to such an extent that it makes me almost hysterical to even see her at this point. She is completely bedridden, and her slightest movement or a touch anywhere on her body elicits such pain that it virtually tears my heart out. She longs to die.
I completely understand how she has come to this level of devastation. Some family members are directly responsible for this due to their selfishness and lack of compassion. There has been discussion about the trials that her condition brought to other family members, and in some, but not all, cases, she became aware of them. I’m very angry, and I think that the biggest wish in my life is that I could give her what was denied to her, and that I could somehow erase her pain and give her that “normal” life that she deserved. The rest of our family had nothing even close to the trials that she has had, and we have NO reason, nor right, to complain.