I am also quite familiar with your problems. I grew up with a mother who had a terminal disease. We found out when I was 12, and it took a very long time to kill her. In the meantime she spent her life in doctor’s offices and at physical therapy. Nobody could prescribe pain killers that worked on her.
The worst part is that if your symptoms are vague enough, it can take many years before you have a diagnosis. Doctors can’t see pain, so if they can’t see the cause of the pain, they have a tendency to “blame the patient”. As a result, Mom dealt with excruciating debilitating pain for years, and all they did was tell her to see a psychiatrist.
Even after she had a diagnosis and wasn’t “crazy” anymore, she still couldn’t find a pain medication that worked for her. Eventually her doctor told her that alcohol had fewer side effects than the prescription muscle relaxants he could offer her.
I’m sure you get where this is going now. Mom became an alcoholic, but at least she had “some” help, because he was right. Alcohol is an excellent muscle relaxant. My story goes on and on, but my point is, get the help wherever you can. Oh, and don’t be afraid to consider alternative remedies if your doctor can’t/isn’t able to help you.